AutomedicationFrancoV1, Main, Exploration, bibRecord, 000A62

[Well-being in adulthood of patients with chronic conditions in childhood: The GEDEPAC-2 questionnaire].

Identifieur interne : 000A62 ( Main/Exploration ); précédent : 000A61; suivant : 000A63

[Well-being in adulthood of patients with chronic conditions in childhood: The GEDEPAC-2 questionnaire].

Auteurs : H. Mellerio [France] ; A. Dumas [France] ; S. Guilmin-Crépon [France] ; C. Loirat [France] ; C. Lévy-Marchal [France] ; V. Audard [France] ; F. De Vathaire [France] ; C. Alberti [France]

Source :

Revue d'epidemiologie et de sante publique [ 0398-7620 ] ; 2017.

RBID : pubmed:28245953

Descripteurs français

KwdFr :
- Adolescent (MeSH), Adulte (MeSH), Concept du soi (MeSH), Emploi (MeSH), Enfant (MeSH), Enquêtes et questionnaires (MeSH), Femelle (MeSH), France (épidémiologie), Humains (MeSH), Jeune adulte (MeSH), Maladie chronique (psychologie), Maladie chronique (épidémiologie), Mâle (MeSH), Protection de l'enfance (MeSH), Qualité de vie (MeSH), Transition aux soins pour adultes (normes), Transition aux soins pour adultes (statistiques et données numériques), Âge de début (MeSH).
MESH :
- normes : Transition aux soins pour adultes.
- psychologie : Maladie chronique.
- statistiques et données numériques : Transition aux soins pour adultes.
- épidémiologie : France, Maladie chronique.
- Adolescent, Adulte, Concept du soi, Emploi, Enfant, Enquêtes et questionnaires, Femelle, Humains, Jeune adulte, Mâle, Protection de l'enfance, Qualité de vie, Âge de début.

English descriptors

KwdEn :
- Adolescent (MeSH), Adult (MeSH), Age of Onset (MeSH), Child (MeSH), Child Welfare (MeSH), Chronic Disease (epidemiology), Chronic Disease (psychology), Employment (MeSH), Female (MeSH), France (epidemiology), Humans (MeSH), Male (MeSH), Quality of Life (MeSH), Self Concept (MeSH), Surveys and Questionnaires (MeSH), Transition to Adult Care (standards), Transition to Adult Care (statistics & numerical data), Young Adult (MeSH).
MESH :
- epidemiology : Chronic Disease, France.
- psychology : Chronic Disease.
- standards : Transition to Adult Care.
- statistics & numerical data : Transition to Adult Care.
- Adolescent, Adult, Age of Onset, Child, Child Welfare, Employment, Female, Humans, Male, Quality of Life, Self Concept, Surveys and Questionnaires, Young Adult.

Abstract

BACKGROUND

In France, chronic diseases affect 3 million children. In children with chronic conditions, long-term somatic outcome has been well described, but little is known about the psychosocial aspects of well-being.

METHODS

Our aim was to build a self-administered questionnaire of global well-being in adults who had a chronic disease since or during childhood using a multidimensional and nonspecific approach. The questionnaire was constructed by a multidisciplinary group (epidemiologists, clinicians, sociologist, statistician). Items were built in compliance with reference data from the French general population (national surveys, free access) to allow comparative analysis adjusted for age and sex (and eventually other confounding factors) by indirect standardization (qualitative variables) or Z-scores (quantitative variables).

RESULTS

The GEDEPAC-2 includes 108 items exploring 11 domains: education, employment, housing, material security, social links, civic engagement, leisure, environment, physical health/risky behavior, health-related quality of life and sex life. Factual questions and satisfaction scales jointly explore social well-being. Quality of life is analyzed in terms of physical quality of life, mental quality of life, fatigue and burden of treatment by 3 questionnaires validated in French (SF-12; MFI-20; Burden of Treatment Questionnaire). Experience of transition from pediatric to adult healthcare is described in 21 items. Paper and electronic versions were developed.

CONCLUSION

Built in a multidimensional approach to well-being and in line with the available reference data, GEDEPAC-2 will facilitate the implementation of future studies on impact in adulthood of chronic disease in childhood.

DOI: 10.1016/j.respe.2017.01.001
PubMed: 28245953

Affiliations:

Links toward previous steps (curation, corpus...)

to stream Main, to step Corpus: 000C20
to stream Main, to step Curation: 000C20

Le document en format XML

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<term>Adult (MeSH)</term>
<term>Age of Onset (MeSH)</term>
<term>Child (MeSH)</term>
<term>Child Welfare (MeSH)</term>
<term>Chronic Disease (epidemiology)</term>
<term>Chronic Disease (psychology)</term>
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<term>Transition to Adult Care (standards)</term>
<term>Transition to Adult Care (statistics & numerical data)</term>
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<term>Adulte (MeSH)</term>
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<term>Emploi (MeSH)</term>
<term>Enfant (MeSH)</term>
<term>Enquêtes et questionnaires (MeSH)</term>
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<term>France (épidémiologie)</term>
<term>Humains (MeSH)</term>
<term>Jeune adulte (MeSH)</term>
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<term>Maladie chronique (épidémiologie)</term>
<term>Mâle (MeSH)</term>
<term>Protection de l'enfance (MeSH)</term>
<term>Qualité de vie (MeSH)</term>
<term>Transition aux soins pour adultes (normes)</term>
<term>Transition aux soins pour adultes (statistiques et données numériques)</term>
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<term>Adult</term>
<term>Age of Onset</term>
<term>Child</term>
<term>Child Welfare</term>
<term>Employment</term>
<term>Female</term>
<term>Humans</term>
<term>Male</term>
<term>Quality of Life</term>
<term>Self Concept</term>
<term>Surveys and Questionnaires</term>
<term>Young Adult</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term>
<term>Adulte</term>
<term>Concept du soi</term>
<term>Emploi</term>
<term>Enfant</term>
<term>Enquêtes et questionnaires</term>
<term>Femelle</term>
<term>Humains</term>
<term>Jeune adulte</term>
<term>Mâle</term>
<term>Protection de l'enfance</term>
<term>Qualité de vie</term>
<term>Âge de début</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en"><p><b>BACKGROUND</b>
</p>
<p>In France, chronic diseases affect 3 million children. In children with chronic conditions, long-term somatic outcome has been well described, but little is known about the psychosocial aspects of well-being.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>METHODS</b>
</p>
<p>Our aim was to build a self-administered questionnaire of global well-being in adults who had a chronic disease since or during childhood using a multidimensional and nonspecific approach. The questionnaire was constructed by a multidisciplinary group (epidemiologists, clinicians, sociologist, statistician). Items were built in compliance with reference data from the French general population (national surveys, free access) to allow comparative analysis adjusted for age and sex (and eventually other confounding factors) by indirect standardization (qualitative variables) or Z-scores (quantitative variables).</p>
</div>
<div type="abstract" xml:lang="en"><p><b>RESULTS</b>
</p>
<p>The GEDEPAC-2 includes 108 items exploring 11 domains: education, employment, housing, material security, social links, civic engagement, leisure, environment, physical health/risky behavior, health-related quality of life and sex life. Factual questions and satisfaction scales jointly explore social well-being. Quality of life is analyzed in terms of physical quality of life, mental quality of life, fatigue and burden of treatment by 3 questionnaires validated in French (SF-12; MFI-20; Burden of Treatment Questionnaire). Experience of transition from pediatric to adult healthcare is described in 21 items. Paper and electronic versions were developed.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>CONCLUSION</b>
</p>
<p>Built in a multidimensional approach to well-being and in line with the available reference data, GEDEPAC-2 will facilitate the implementation of future studies on impact in adulthood of chronic disease in childhood.</p>
</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">28245953</PMID>
<DateCompleted><Year>2017</Year>
<Month>09</Month>
<Day>29</Day>
</DateCompleted>
<DateRevised><Year>2017</Year>
<Month>09</Month>
<Day>29</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Print">0398-7620</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>65</Volume>
<Issue>2</Issue>
<PubDate><Year>2017</Year>
<Month>Apr</Month>
</PubDate>
</JournalIssue>
<Title>Revue d'epidemiologie et de sante publique</Title>
<ISOAbbreviation>Rev Epidemiol Sante Publique</ISOAbbreviation>
</Journal>
<ArticleTitle>[Well-being in adulthood of patients with chronic conditions in childhood: The GEDEPAC-2 questionnaire].</ArticleTitle>
<Pagination><MedlinePgn>137-148</MedlinePgn>
</Pagination>
<ELocationID EIdType="pii" ValidYN="Y">S0398-7620(17)30003-2</ELocationID>
<ELocationID EIdType="doi" ValidYN="Y">10.1016/j.respe.2017.01.001</ELocationID>
<Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">In France, chronic diseases affect 3 million children. In children with chronic conditions, long-term somatic outcome has been well described, but little is known about the psychosocial aspects of well-being.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Our aim was to build a self-administered questionnaire of global well-being in adults who had a chronic disease since or during childhood using a multidimensional and nonspecific approach. The questionnaire was constructed by a multidisciplinary group (epidemiologists, clinicians, sociologist, statistician). Items were built in compliance with reference data from the French general population (national surveys, free access) to allow comparative analysis adjusted for age and sex (and eventually other confounding factors) by indirect standardization (qualitative variables) or Z-scores (quantitative variables).</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">The GEDEPAC-2 includes 108 items exploring 11 domains: education, employment, housing, material security, social links, civic engagement, leisure, environment, physical health/risky behavior, health-related quality of life and sex life. Factual questions and satisfaction scales jointly explore social well-being. Quality of life is analyzed in terms of physical quality of life, mental quality of life, fatigue and burden of treatment by 3 questionnaires validated in French (SF-12; MFI-20; Burden of Treatment Questionnaire). Experience of transition from pediatric to adult healthcare is described in 21 items. Paper and electronic versions were developed.</AbstractText>
<AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">Built in a multidimensional approach to well-being and in line with the available reference data, GEDEPAC-2 will facilitate the implementation of future studies on impact in adulthood of chronic disease in childhood.</AbstractText>
<CopyrightInformation>Copyright © 2017 Elsevier Masson SAS. All rights reserved.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Mellerio</LastName>
<ForeName>H</ForeName>
<Initials>H</Initials>
<AffiliationInfo><Affiliation>ECEVE, UMRS 1123, université Paris Diderot, Sorbonne Paris Cité, 10, avenue de Verdun, 75010 Paris, France; Inserm, ECEVE U1123, CIC-EC, CIC 1426, 10, avenue de Verdun, 75010 Paris, France; Unité d'épidémiologie clinique, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75019 Paris, France. Electronic address: helene.mellerio@inserm.fr.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Dumas</LastName>
<ForeName>A</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>U1018, équipe d'épidémiologie des radiations, centre de recherche en épidémiologie et santé des populations, 114, rue Édouard-Vaillant, 94805 Villejuif cedex, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Guilmin-Crépon</LastName>
<ForeName>S</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>ECEVE, UMRS 1123, université Paris Diderot, Sorbonne Paris Cité, 10, avenue de Verdun, 75010 Paris, France; Inserm, ECEVE U1123, CIC-EC, CIC 1426, 10, avenue de Verdun, 75010 Paris, France; Unité d'épidémiologie clinique, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75019 Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Loirat</LastName>
<ForeName>C</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>Service de néphrologie pédiatrique, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75019 Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Lévy-Marchal</LastName>
<ForeName>C</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>Inserm, pôle recherche clinique, 101, rue de Tolbiac, 75013 Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Audard</LastName>
<ForeName>V</ForeName>
<Initials>V</Initials>
<AffiliationInfo><Affiliation>Service de néphrologie et transplantation, institut francilien de recherche en néphrologie et transplantation, hôpital Henri-Mondor, Assistance publique-Hôpitaux de Paris, 51, avenue du Maréchal-de-Lattre-de-Tassigny, 94010 Créteil, France; Université Paris-Est Créteil, 61, avenue du Général-de-Gaulle, 94010 Créteil cedex, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>de Vathaire</LastName>
<ForeName>F</ForeName>
<Initials>F</Initials>
<AffiliationInfo><Affiliation>U1018, équipe d'épidémiologie des radiations, centre de recherche en épidémiologie et santé des populations, 114, rue Édouard-Vaillant, 94805 Villejuif cedex, France; Institut Gustave-Roussy, 114, rue Édouard-Vaillant, 94805 Villejuif cedex, France; Université Paris Sud, 91405 Orsay cedex, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Alberti</LastName>
<ForeName>C</ForeName>
<Initials>C</Initials>
<AffiliationInfo><Affiliation>ECEVE, UMRS 1123, université Paris Diderot, Sorbonne Paris Cité, 10, avenue de Verdun, 75010 Paris, France; Inserm, ECEVE U1123, CIC-EC, CIC 1426, 10, avenue de Verdun, 75010 Paris, France; Unité d'épidémiologie clinique, hôpital Robert-Debré, Assistance publique-Hôpitaux de Paris, 48, boulevard Sérurier, 75019 Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
</AuthorList>
<Language>fre</Language>
<PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType>
</PublicationTypeList>
<VernacularTitle>Bien-être à l’âge adulte des enfants atteints de maladies chroniques : le questionnaire GEDEPAC-2.</VernacularTitle>
<ArticleDate DateType="Electronic"><Year>2017</Year>
<Month>02</Month>
<Day>27</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo><Country>France</Country>
<MedlineTA>Rev Epidemiol Sante Publique</MedlineTA>
<NlmUniqueID>7608039</NlmUniqueID>
<ISSNLinking>0398-7620</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D017668" MajorTopicYN="N">Age of Onset</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D002669" MajorTopicYN="N">Child Welfare</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D002908" MajorTopicYN="N">Chronic Disease</DescriptorName>
<QualifierName UI="Q000453" MajorTopicYN="Y">epidemiology</QualifierName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D004651" MajorTopicYN="N">Employment</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005602" MajorTopicYN="N">France</DescriptorName>
<QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011788" MajorTopicYN="Y">Quality of Life</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D012649" MajorTopicYN="N">Self Concept</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D060305" MajorTopicYN="Y">Transition to Adult Care</DescriptorName>
<QualifierName UI="Q000592" MajorTopicYN="N">standards</QualifierName>
<QualifierName UI="Q000706" MajorTopicYN="N">statistics & numerical data</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Child</Keyword>
<Keyword MajorTopicYN="N">Chronic disease</Keyword>
<Keyword MajorTopicYN="N">Enfant</Keyword>
<Keyword MajorTopicYN="N">Maladie chronique</Keyword>
<Keyword MajorTopicYN="N">Participation sociale</Keyword>
<Keyword MajorTopicYN="N">Quality of life</Keyword>
<Keyword MajorTopicYN="N">Qualité de vie</Keyword>
<Keyword MajorTopicYN="N">Questionnaires</Keyword>
<Keyword MajorTopicYN="N">Sexuality</Keyword>
<Keyword MajorTopicYN="N">Sexualité</Keyword>
<Keyword MajorTopicYN="N">Social participation</Keyword>
<Keyword MajorTopicYN="N">Transition aux soins pour adultes</Keyword>
<Keyword MajorTopicYN="N">Transition to adult care</Keyword>
</KeywordList>
</MedlineCitation>
<PubmedData><History><PubMedPubDate PubStatus="received"><Year>2015</Year>
<Month>12</Month>
<Day>03</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="revised"><Year>2016</Year>
<Month>09</Month>
<Day>15</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="accepted"><Year>2017</Year>
<Month>01</Month>
<Day>04</Day>
</PubMedPubDate>
<PubMedPubDate PubStatus="pubmed"><Year>2017</Year>
<Month>3</Month>
<Day>2</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="medline"><Year>2017</Year>
<Month>9</Month>
<Day>30</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="entrez"><Year>2017</Year>
<Month>3</Month>
<Day>2</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
</History>
<PublicationStatus>ppublish</PublicationStatus>
<ArticleIdList><ArticleId IdType="pubmed">28245953</ArticleId>
<ArticleId IdType="pii">S0398-7620(17)30003-2</ArticleId>
<ArticleId IdType="doi">10.1016/j.respe.2017.01.001</ArticleId>
</ArticleIdList>
</PubmedData>
</pubmed>
<affiliations><list><country><li>France</li>
</country>
<region><li>Île-de-France</li>
</region>
<settlement><li>Créteil</li>
<li>Orsay</li>
<li>Paris</li>
<li>Villejuif</li>
</settlement>
</list>
<tree><country name="France"><region name="Île-de-France"><name sortKey="Mellerio, H" sort="Mellerio, H" uniqKey="Mellerio H" first="H" last="Mellerio">H. Mellerio</name>
</region>
<name sortKey="Alberti, C" sort="Alberti, C" uniqKey="Alberti C" first="C" last="Alberti">C. Alberti</name>
<name sortKey="Audard, V" sort="Audard, V" uniqKey="Audard V" first="V" last="Audard">V. Audard</name>
<name sortKey="De Vathaire, F" sort="De Vathaire, F" uniqKey="De Vathaire F" first="F" last="De Vathaire">F. De Vathaire</name>
<name sortKey="Dumas, A" sort="Dumas, A" uniqKey="Dumas A" first="A" last="Dumas">A. Dumas</name>
<name sortKey="Guilmin Crepon, S" sort="Guilmin Crepon, S" uniqKey="Guilmin Crepon S" first="S" last="Guilmin-Crépon">S. Guilmin-Crépon</name>
<name sortKey="Levy Marchal, C" sort="Levy Marchal, C" uniqKey="Levy Marchal C" first="C" last="Lévy-Marchal">C. Lévy-Marchal</name>
<name sortKey="Loirat, C" sort="Loirat, C" uniqKey="Loirat C" first="C" last="Loirat">C. Loirat</name>
</country>
</tree>
</affiliations>
</record>

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[Well-being in adulthood of patients with chronic conditions in childhood: The GEDEPAC-2 questionnaire].

[Well-being in adulthood of patients with chronic conditions in childhood: The GEDEPAC-2 questionnaire].

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